Below is a list of topics covered in this book, available at the Don and Cathy Jacobs Health Education Center at the University of Kentucky.
Part 1: The Basics
What are Myelodysplastic Syndrome (MDS)?
How common is MDS?
What causes MDS?
Part 2: Diagnosis, Classification, and Prognosis
Is MDS one disease or a syndrome of similarly related diseases?
How is MDS diagnosed?
What is involved in a bone marrow biopsy? What information does the biopsy provide?
Part 3: Symptoms and Treatment Options
How is response evaluated in MDS?
What are the most common presenting symptoms in MDS?
What factors are weighed when evaluating specific treatment options for MDS?
Part 4: Treatment, Supportive Care, and Side Effects
What are the differences between treatment and supportive care? What are the components of each option?
When do I need a red blood cell transfusion?
What does it mean if I develop antibodies to red blood cells or platelet transfusions?
Part 5: Stem Cell and Bone Marrow Transplantation
What is stem cell transplantation?
What are the different types of stem cell transplantation?
What factors are considered when evaluating a patient for bone marrow or stem cell transplantation?
Part 6: Clinical Trials and Experimental Treatments
What other medications have been evaluated in MDS?
What is an investigational drug?
Am I a candidate for a clinical trial?
Part 7: Managing Your Health
How do I choose a hematologist?
Should I get a second opinion?
What precautions are necessary with a diagnosis of MDS?