NCCN Patient Guidelines: Myelodysplastic Syndromes

nccn-myelodysplastic-syndromes

Below is a list of topics covered in this book, available at the Don and Cathy Jacobs Health Education Center at the University of Kentucky.

For more information, visit NCCN.org/patients

Topics

How to Use This Book

Part 1: MDS Basics

Part 2: Testing for MDS

Part 3: Prognostic Scoring and Risk Groups

Part 4: Overview of MDS Treatments

Part 5: Treatment Guide

Part 6: Making Treatment Decisions

Glossary

Dictionary

Acronyms

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100 Questions and Answers about Myelodysplastic Syndromes by Jason Gotlib, M.D & Lenn Fechter, R.N

100-questions-and-answers-about-mds

Below is a list of topics covered in this book, available at the Don and Cathy Jacobs Health Education Center at the University of Kentucky.

Introduction

Part 1: The Basics

What are Myelodysplastic Syndrome (MDS)?

How common is MDS?

What causes MDS?

Part 2: Diagnosis, Classification, and Prognosis

Is MDS one disease or a syndrome of similarly related diseases?

How is MDS diagnosed?

What is involved in a bone marrow biopsy? What information does the biopsy provide?

Part 3: Symptoms and Treatment Options

How is response evaluated in MDS?

What are the most common presenting symptoms in MDS?

What factors are weighed when evaluating specific treatment options for MDS?

Part 4: Treatment, Supportive Care, and Side Effects

What are the differences between treatment and supportive care? What are the components of each option?

When do I need a red blood cell transfusion?

What does it mean if I develop antibodies to red blood cells or platelet transfusions?

Part 5: Stem Cell and Bone Marrow Transplantation

What is stem cell transplantation?

What are the different types of stem cell transplantation?

What factors are considered when evaluating a patient for bone marrow or stem cell transplantation?

Part 6: Clinical Trials and Experimental Treatments

What other medications have been evaluated in MDS?

What is an investigational drug?

Am I a candidate for a clinical trial?

Part 7: Managing Your Health

How do I choose a hematologist?

Should I get a second opinion?

What precautions are necessary with a diagnosis of MDS?

Additional resources

Glossary

Index